First visit with new GP

January 2, 2014
The long anticipated wait till the new year for health insurance and to see my new doctors is over, thank goodness!! 


Old X-rays taken, my first meeting with my GP went well. Got lots of new orders and referrals.
It was very overwhelming for both of us. He probably mentioned it four times. But he “likes a challenge” his words exactly. I just kept apologizing I couldn’t keep the tears away neither could mom.
He is going to do some research and talk to a friend of his that’s wife has EDS. He says for sure I have a connective tissue disorder and not fibromyalgia maybe marfans but he dosnt hear a murmur so that’s good news. I still strongly suspect EDS with marfanoid habatius.

Here were his orders from today
-Echocardiogram 
-Support hoes :)

-New endocrinologist one door over instead of 300 miles away. 

-Convinced him to take new labs since it’s been years and SOOOO much has changed in that time. 
-Referral to Physiatrist for bracing :)

-home health program, to learn all about different options and to get mom listed as my caregiver she’s already certified and already takes care of me. 
…..um I think there was something else. I forgot.
 He said I’m obviously disabled and I think he’s gonna help me with this… I hope.

He took notes about the Venus reflux prescan and tilt table test.
Laughed a bit when I asked about a micronutrient panel. So oh well. It was a long shot.
I gave him some lit on POTS since that’s what we are focusing on that and the Venus pooling. And he asked about for it. I also through in the Alan Pocinki JHS paper too. Hope he can handle all this! Plus ya know my massive document probably 15 pages a fucking novel on my history and the year and symptoms-he said he would have liked this prior to the visit. :( oh well. I learned, I didn’t finish it till Tuesday!
I think this is the start to a interesting journey for sure. So glad to finally have kickstarted everything into gear.
See the geneticist in a week or two, will call Monday to find out when he thinks he will be down here.
And the rheumatologist is February. Which the GP says he’s not gonna be nessisary. So that’s good, one less doc.
Will see him again he said in a month but I asked and he said after his will work. I probably should have scheduled for February 4th but went for March, I think I’ll be in their before that though. I’ll call.
Also made some returns, dropped off a couple cards, spoke to a bestie whos coming over Saturday yay! saw my mechanic for a min :( sad news his dog died last week :( RIP Taylor. And I picked up my old head X-rays and knee MRI disk.

Good day just reasting now

. But at the hospitol I nearly had a panic attack. My body was giving out and breathing got so difficult but I finally made it up to radiology and a lady put me in a wheelchair for intake and I calmed down but my body kept rocking in the chair. And my bad knee that pain that I thought was getting better , it's not now after the hike around the hospitol today!