It's been over a year since I've posted here cause mainly I feel the EDS/ Spoonie community is still on Tumblr and Instagram (and of course facebook) but also I've been truly too sick too move let alone write, read, edit and post, plus sometimes im a bit of a perfectionist and overthink my writing way to much. But I want a place that is strickly for my thoughts and experiences about my medical life. Here is the perfect place to do it and what do you know I've tried this before so might as well pick up where I left off on the same blog. I'll fill in the gaps between jan and october some time later down the line if need be but Im gonna pick up from the most pivotal part of my life to now and hopefully keep on writing /videoing when I can as time goes on with shorter updates
I promised myself and my tumblr followers to give details on my East Coast Excursion from October 2014 and those posting are coming very soon and much more too. I'm Getting all my ducks in a row and will be more active again soon hopefully, ill be able to keep it up. At least getting you all up to date on current medical events. I am working on editing the writings I've made over the last three-ish month (mostly from the time of the trip) to make them as coherrant and complete as possible, but they are long and theres just no way around it for me it was two weeks of continues medical appointments and information plus I want to share it all, I like my details and rants so that is what you can expect coming in the next few days likely in two parts cause it is a lot of info and a lot of frustration too. the trip was extremely wild in retrospect.
Thanks for the support and patience. I am doing this mainly for myself but also if I can help anyone else out there in a position like me or like I was in, I want to spread whatever help or knowledge I can. Also want to spread as much awarness about these conditions as possible.
Spread the word and Spread the Love.
Peace and Healing to Everyone.
TEC
Welcome to my online journal documenting from my perspective the events of my life unfolding as a partially wheelchair bond young women with several chronic invisible illnesses and how I navigate a sea of doctors in multiple specialties, more diagnosis then i can count and the realm of the long term invisibility sick and chronically ill. Spreading Awarness along the way with a hopeful and positive spin on a goofy life. Always searching for the next helpful tool to share with my spoonie family.
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