My Mom and I went back east at the end of August and came back with the understanding that I need to have my upper neck fused and ASAP. We got a lot of important info and now I just need to come up with the finances to afford these life saving surgeries. I will need three surgeries, each that will need a $10,000 deposit, and is not covered by insurance. Every operation is critical to gaining back independance in my life, but also to prevent further damage, strokes and paralysis. These operation should be done as close together as possible based on the advancement of the symptoms I'm having for each individual issue. I have no way to cover the costs of the deposit let alone the travel, room and board costs for these several trips back east. Please if you can pass along my fundraiser page and donate If you can I would be forever grateful. You could help to save my life truly.
Welcome to my online journal documenting from my perspective the events of my life unfolding as a partially wheelchair bond young women with several chronic invisible illnesses and how I navigate a sea of doctors in multiple specialties, more diagnosis then i can count and the realm of the long term invisibility sick and chronically ill. Spreading Awarness along the way with a hopeful and positive spin on a goofy life. Always searching for the next helpful tool to share with my spoonie family.
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